I quit my job. I went in for the last time to clean up and say goodbye this past Monday. It was so bittersweet. I was sad and while walking away I wasn't sure if I made the right decision or not. Then I got home and the second Jack saw me he gave me the biggest gummy smile I've ever seen and that answered my question right there. How can I NOT be home with this guy if I have the option to be?
We also stuck a wedge (aka folded-up blanket) under the head of his bassinet mattress and now he seems to be sleeping a bit better too. This has helped keep the acid down and has also helped with his snoring/gasping/waking himself up in the night. We're pretty sure he had sleep apnea. Very common with Achon. We have an appt to see Ear/Nose/Throat (ENT) doc to assess this and do a sleep study.
Also, Jack had his follow up appt with the Audiologist (since he failed both hearing tests in the hospital) and they confirmed that he does have hearing loss. Mild loss in one ear and just slight in the other. Again, common with Achon. For now we'll just continue to monitor it and hope it doesn't get worse. He will likely need ear tubes at some point around or even before his first birthday anyway so that might possibly help but we'll see if he needs a hearing aid down the line.
Finally, Jack has torticollus in his neck (prefers to always lay with his head to the same side and this is also causing a flat spot) so we contacted Early Intervention and will be starting physical therapy next week!
Things are moving along with him. Monitoring the issues we expected to come up and thankfully haven't had any unexpected things happen yet. Besides the ENT doc he also has upcoming appointments with the Geneticist and Nephrologist (kidney doc) and then his 4mo appt next month!
I've been in touch with my RE about next steps for me and Hubs regarding someday expanding our family since I suspect we will need to think long and hard about what we want to do. He did indeed suggest genetic testing for both of us and also PGD for our 3 frosties as "we can't be sure if they are genetically viable or not due to [my] pregnancy history". Ouch. I am very emotional about this. I've always thought of those 3 frosties as the completion of our family, just waiting for us. Now I have no idea what will happen. PGD could destroy them if we thaw and then refreeze any "viable" ones. We could go through all the steps (and meds) of a FET and then do PGD just before transfer to ensure we are transferring a healthy embie and then what if testing reveals we don't have a healthy one and they all have genetic issues? Would we make the decision to ::gulp:: destroy them? What if we transfer anyway and what happened to Petey happens to another little baby? I'm not sure my heart could take it. I'm not positive my heart can take ANY of this... It's a shitty shitty place to be.
But besides that emotional land mine I am doing well. My PP bleeding is still unpredictable even after being on BCPs for the last 2 months so that's fun. OB said we'll give it one more month and if I'm still bleeding we'll try a new med. Bleeding for the majority of the last 13 weeks sure has been fun though lemme tell ya! Things are good though. We're busy because it's summer and there's lots of family and friends around. Not much time to think but I am happy.
Here are some more pics of my beautiful baby. He's smiley, he can reach for his toys, he's learning to wave... He's just amazing. 3 months is shaping up to be a very fun age since he is finding ways to communicate and connect. Every new thing he does is just amazing to me. Every day I am grateful and can't believe he's ours. We MADE him. That is incredible.
|Someone loves his daddy!|
|This one was almost the monthly update photo...|
|...or this one. "Who the heck is this guy?"|
|And now at 13 weeks - such a big boy <3|