tag:blogger.com,1999:blog-28981572991651188922024-02-19T19:38:50.779-05:00Diary of a Little ChickenAn open and honest account of one girl's journey to a family; through infertility, pregnancy and late-term loss (via termination for medical reasons), to finally raising little Jack: our amazing son with Achondroplasia, a form of dwarfism.ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.comBlogger332125tag:blogger.com,1999:blog-2898157299165118892.post-35667376773266602262019-10-09T08:52:00.002-04:002022-10-20T21:27:55.624-04:00Life as a single momCan I just start by saying: I am SO MUCH HAPPIER. I think this quote sums it up perfectly:<br />
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It's exactly how I feel. Now that I am out of my marriage I realize just how much it was affecting me emotionally, spiritually, even physically! I am healthier now in all ways.<br />
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Life is harder in other ways too though: I'm a single mom. I rarely get a real break. Even when Ex-Hubs takes Jack for an overnight at his place, it still means I have him every single day - dropping him off for school on a Friday morning and then he comes back after naptime the very next day. So it is tiring. And he's 4 now. He is... a spirited child. He is the freakin light of my life but he is TOUGH. Incredibly strong-willed and stubborn. Incredibly active. It is a GOOD thing and will likely serve him well in all that he'll need to overcome in life but DAMN it is hard to parent such a strong willed child. I get help from others when I can, and when I can't, I endure. The phases will pass, I am sure. I'm just trying to keep my sanity and my patience in the meantime.<br />
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At the same time - he is amazing. He is the most charismatic kid I know. He is SO friendly, SO chatty, SO entertaining. He knows everyone and everyone knows him. I am very glad I stayed in this area where we were living. I found a perfect townhome in the next town over and Jack and I have been happy here.<br />
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I've been happy for other reasons too...<br />
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I met a wonderful man. He and I have been together for over a year now and are very much in love. We connected through an online forum as we were both going through divorces at the same time. We just completely clicked and it felt like we had been friends forever. After talking for a while we swapped pictures. And damn - we both knew. He is wonderful and loving and sweet and sexy and an amazing father to his two teenage children. He is is also an amazing man to have in Jack's life. He has stepped up in every sense of the word and he and Jack love each other too. I could not ask for anything more. The ONLY challenge is that he lives in Canada. Whomp, whomp. Luckily it's on THIS side of North America, haha, but it still takes him about 7.5 hrs to drive here. And he does it religiously, every other weekend. He has his kids 50% of the time, and I have Jack almost all the time, so we get together every time our schedules allow. It works out to being able to see each other for about 2.5-3 days every 2 weeks. Sometimes that's hard and I do miss him, but othertimes I think it's a good thing because it allows us each to cultivate our own lives, especially since we've both been through such huge changes over the last 1.5 years with our divorces. It also allows me the time to work on.....<br />
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My new business!!<br />
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My sister and I opened a business about 5 months ago :-) (Yes, I am crazy.) She is a gifted energy healer and psychic medium and always has been. So we decided to go for it and open up an actual business here in Southern New Hampshire. It's been going really well and I'm proud of us and also happy and feeling quite fulfilled with this work.<br />
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As for other things in life, I really have no complaints. I am so very glad that I am where I am in life now. All the medical difficulties with Jack really calmed down after around 3.5 years old. He got long term ear tubes in and we haven't had a problem since with his hearing or any more ear infections. He has rarely gotten sick over the last year, he doesn't have many other medical issues going on currently... It's been quite the relief. We still have all our yearly check ups with his 8 specialists (let's see if I can even remember them all: Pediatrician, Nephrologist, Geneticist, Orthopedist, Otolaryngologist, Ophlamologist, Neurologist...I'm forgetting someone...) but there have been no additional issues. I know there will likely be things to deal with in the future - especially orthopedically - related to the way his bones grow, and also oral surgeries due to his small mouth and teeth crowding (at a minimum), but for right now I am feeling very very blessed. The ONLY thing that is still an issue now is his poor sleep. (AH! Pulmonologist! That's the last one hahaha) It seems he is just a poor sleeper. He wakes up many times every night. It's just the way it is. I've tried EVERYTHING and to no avail so I've learned to adjust by trying to go to bed earlier myself and just dealing with it. It is what it is. Someday I'll sleep again.<br />
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Otherwise, Jack is happy, healthy, active, growing, and life is good.<br />
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It is SO wonderful to provide a GOOD update here. :-)<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com2tag:blogger.com,1999:blog-2898157299165118892.post-70503343292514743562018-07-13T22:07:00.000-04:002019-10-09T07:48:20.269-04:00Howdy!So I disappeared off the face of the earth there for oooooh, a year and a half or so, haha! Whoops.<br />
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Things are certainly different since the last time I wrote!<br />
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I haven't even come back onto the blog in ages and I had to laugh reading the paragraph about things not going so well with me and Hubs. Understatement. We are now in the middle of a divorce. It got to a point where we were just so completely disconnected, living parallel lives with him on the west coast half of the time and me and Jack on the east coast. There has been zero intimacy OR really even any affection between us for years now and it was slowly killing me inside. So in the interest of trying to maintain some semblance of self, Hubs and I both agreed we should go our separate ways. We still love each other but this isn't a marriage. We are roommates (well, some of the time since he has been traveling for work more than 50% of the time for at least 2 years now), and co-parents. (And another disclaimer on that one since I'm the one doing most of the parenting.)<br />
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So there you have it. It is amicable, it is timely (since Jack turned 3 in April and so he will never know any different than having Daddy not really live with him and Mommy), and it is for the best.<br />
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I'd be lying if I didn't say that I do have some fear: I am now an unemployed single mom of a child with special needs. Holy shit. But things should be okay. My motto over the past year has been "Let your faith be bigger than your fear". I have been working hard at that and I'm proud of myself. I'm sure there will be complete shit moments but overall I think it will be a good thing. I want to have a REAL relationship (and hopefully marriage) someday, not this crumbling marriage that has just turned into a facade where we don't even care to be in the same room with one another. I want to have a partner who WANTS to be with me, and I with him, who loves to do the same sorts of things I do, and who appreciates me. Cuz I'm awesome. hahaha<br />
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I've reached out to tons of people for support and things are going pretty smoothly right now. I'm currently house hunting as I will need to downsize. And I plan to stay in the area we've been in in New Hampshire. I realized I like it here. It feels like home now and I'm starting to integrate into the community a bit finally. Also, people are starting to know Jack. That is going to be REALLY important for him as he grows and starts school so he has a support system. Plus my sister (who is my best friend) is just one town over so that's pretty great. <br />
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Last time I posted we were still living in the San Francisco Bay Area. After a little over a year out there, Jack and I had to come back for some medical appointments for him (all his specialists are still at Boston Children's Hospital) and he ended up needing some surgeries and procedures that stretched out our timeline. In the end, Jack and I never went back to CA and Hubs split his time between coasts. That obviously didn't help our marriage but it got to a point where I liked it better when he was gone than when he was here with us so that was pretty telling. I would say our marriage had been on life support for the last couple years and we were in couples therapy off and on, but I think we both agree that this relationship was completely dead by about 6 months ago. We officially called time of death last month and things have been okay. We're working well together (better than we were when we were still trying to make the marriage work, ironically), and we both agree that the most important thing is to put Jack first.<br />
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Hubs has moved out and into an apartment here on the east coast and I suspect he will continue to be in CA a lot of the time too. I will basically have full custody, mostly due to Hubs' work travel, and as Jack gets older and out of his mommy-obsessed phase (please let that be soon!!), our plan is to do every other weekend so I can attempt to be an adult out in the world again at some point. I will have him all week long and Hubs would still like to come over at least once a week for dinner and bedtime together.<br />
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So... it's been a lot. It's been a tough couple of years and things will continue to be challenging for me but I think this is for the best.<br />
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So there's THAT major shitshow in a nutshell!<br />
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Beyond that, there's Jack. And he is AWESOME. He is so funny and adorable and sweet and caring and SMART. Everyone who meets him falls in love with him instantly. It's honestly impossible not to.<br />
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He's in part-time daycare at an early childhood education center so it's really more like a preschool. He started last Fall and since then his speech just took off. He amazes me! And the kid has a memory like an elephant. (Don't know where he gets that because I can't even remember what I ate for lunch today.)<br />
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Physically he's doing great. He runs, jumps, climbs everywhere. He can do everything his short-statured body will allow him to do. He's no longer in physical therapy and is just a regular kid, doing his thing.<br />
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Medically, he's needed some procedures over the last couple years: adenoidectomy, tonsillectomy, 3 ear tube surgeries (#4 scheduled for next month) due to chronic ear infections, 3 overnight sleep studies... I think those are the major points.<br />
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Thanks to the surgeries his sleep apnea is WAY better now (he went from stopping breathing 44 times per HOUR on average (!!!) to just 8 times per hour), and many nights now he sleeps at least decently, some nights even well. Sleep has been the hardest thing over the years because the apnea episodes would wake him up between 4-8 times per night, he'd usually start coughing and then either couldn't get back to sleep without me rocking him, or he would actually end up throwing up from all the coughing and then we were up for at least an hour in the middle of the night cleaning up, changing sheets and getting him to calm down. It's been exhausting. I am permanently sleep deprived and can't remember the last time I slept for more than 3 hours in a row without being awoken but there's really no way around it and I just have to hope and pray that it will get better someday.<br />
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We also discovered Jack has asthma so he's on an inhaler twice a day and has a rescue inhaler as well. We did have one instance about 6 months ago when we had to use the rescue inhaler in the middle of the night and learned the hard way that he was allergic to the Rx! It was a very scary night calling 911 and waiting for what seemed like forever for the ambulance to come while he couldn't breathe... ugh. I hope to God that will never happen again.<br />
As for the asthma, thankfully he has now grown out of the nightly nebulizer treatments as that was a giant pain in the ass and a fight every single night, but it does cause things to be REALLY hard every single time he gets a cold. When he's sick he has a very hard time breathing and so he can't sleep. Therefore I don't get to sleep because I'm up with him and then I end up getting sick too. It's a vicious cycle. (THAT is actually one part I'm apprehensive about with being a single mom - it is truly almost impossible to take care of him myself when he is sick. Or rather, I can take care of him 24/7 but then I'm unable to take care of mySELF. I will miss having Hubs there to help care for me and make sure I'm eating and drinking and able to nap when I can during those times. That will be really hard.)<br />
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Medically beyond that, during a previous MRI the neurologist found that Jack had enlarged ventricles in his brain and they were causing issues with pressure on his optic nerves. So we became intimately familiar with the Ophthalmologist. We had to go every month for 6 months, then every 2 months, every 3, every 6, and FINALLY, MERCIFULLY we are now just at once a year. Whew, that was a tough one. The problem is, apparently if they found anything changing with the optic nerves we would need immediate surgery because it can cause irreparable blindness. Luckily, there were no bad side effects, and as the pressure of his enlarged ventricles started to decrease a bit as he got older and his head grew to make more room for them, the worry decreased. A subsequent MRI showed that some of the swelling in his brain has gone down so we are now in good shape.<br />
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Finally, the other thing we deal with that I didn't expect is frequent hearing tests. Due to all his chronic ear infections and middle ear fluid, he has hearing loss. It fluctuates between mild and severe hearing loss but over the past 9 months we've now seemed to settle on mild loss in one ear and moderate in the other. Things are manageable right now and he doesn't need any hearing aids.<br />
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Phew. That was a lot to dump out here. I'm sure there is a TON of stuff I am forgetting in all of this time but those are the major points.<br />
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Jack continues to just be the light of my life and is so much fun. (And SO challenging - three year olds are not easy!) I have lots of changes in the works and more coming but I'm feeling good about things overall.<br />
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Now for the whole reason you're here: Picture overload time!!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Fireman Jack for Halloween</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Waiting for Santa</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">It's fun to stay at the Y M C A</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">He's on the phone with Peppa Pig doing "very important work".</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2GvBlSCj8B9DJoSJCri3GeAI2DQqTOxG6WUTpsYay5Izb12hJODcHvE05Vk6462iGDfqgnK0jDXnqp_UqKyr6KTFVSR0la1BBjz1-2pjcv1qleK8NEyfcUkqsiM1ifEMPECUH8s5KKyU/s1600/34962662_10155484388558456_8142271160055234560_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2GvBlSCj8B9DJoSJCri3GeAI2DQqTOxG6WUTpsYay5Izb12hJODcHvE05Vk6462iGDfqgnK0jDXnqp_UqKyr6KTFVSR0la1BBjz1-2pjcv1qleK8NEyfcUkqsiM1ifEMPECUH8s5KKyU/s320/34962662_10155484388558456_8142271160055234560_n.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Loves dolls as long as they are naked.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting to be such a big boy.</td></tr>
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Ok, I need to stop now. I could go on forever. He is just such an adorable little lovebug.<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com5tag:blogger.com,1999:blog-2898157299165118892.post-80867174037148589732017-05-29T03:02:00.003-04:002017-05-29T03:13:26.084-04:00Jack is twoWell, 2 plus almost 2 months now :-) I'm a little slow.<br />
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He is awesome. He's on the go all the time now, can't just walk but has to run everywhere all the time. Kisses all his stuffed animals first thing every morning and "feeds" his farm animals (LittlePeople) before we can go downstairs and have breakfast. He loves to give kisses and hugs, waves and smiles at everyone he sees and is generally just the sweetest cutest kid ever. He's been getting his fair share of stares lately when we're out in public - I think it must be that he's now grown enough that people can tell he's not a baby but can't quite figure out what's "wrong". I dread when he's a little older and starts noticing the stares. For the most part though, people just generally comment on what a cutie he is and I have to agree! <br />
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We had him evaluated for speech therapy a few months ago and got some good tips on how to work with him at home. He is now up to 30 words which is a huge improvement and he seems to gain a word-a-day lately! He also now refuses to call us Mama and Dada any longer, it's only Mommy and Daddy and he will correct us when we forget.<br />
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This kid is a little spitfire. He has a great sense of humor and I can't get enough of him. (Except for when I can, but then I drop him off at PT daycare :-) )<br />
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<br />
THE STATS:<br />
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25 lbs, 28.5 inches<br />
Wearing size 12-18 mo tops and 12 mo bottoms<br />
Has all his teeth except the dreaded "2-year molars"<br />
Favorite show is Little Baby Bum videos on YouTube<br />
Favorite foods are blueberries, yogurt smoothies, and anything anyone else is eating<br />
Loves trucks, vehicles, trains, balls, Elmo, swinging, playing in the sand<br />
Breathing better since he had his adenoids removed<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnYVLq_MRr0Esz0Uq_UAW-QhRV5OSnVQ-DQ2SvzDuJUUfmjPKnY5GF-sWzV5wxzUIC6apOds8zKl9GnJnHGx60QindTXCeFd1uoWgEH0iUREa12Go65-hX4aBb33g4FR2soyLyVl1ITsA/s1600/pockets+25+mos.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnYVLq_MRr0Esz0Uq_UAW-QhRV5OSnVQ-DQ2SvzDuJUUfmjPKnY5GF-sWzV5wxzUIC6apOds8zKl9GnJnHGx60QindTXCeFd1uoWgEH0iUREa12Go65-hX4aBb33g4FR2soyLyVl1ITsA/s320/pockets+25+mos.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Finally discovered his pockets.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Cool dude.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The kid loves to swing!</td></tr>
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com7tag:blogger.com,1999:blog-2898157299165118892.post-27707658424538091702017-05-14T15:54:00.002-04:002017-05-14T15:55:59.104-04:00It's Mothers Day.This is my 3rd Mothers Day as a mama with a child here in my arms. And I still feel emotional and disjointed and just... yucky about this day. I am so grateful for Jack. SO grateful I don't even know how to express it and when I think about it too much I tear up. And I miss Petey. And when I think about it too much I tear up. (And now I am fighting back tears at a sidewalk cafe with happy people walking by. Dammit.) I hate that I still feel so effected by this day. I try not to make it a loaded day but it still is. I fight the depressive feelings. I fight the memories and the what-ifs. I fight the feeling that I'm somehow a fraud as I hold my one child in my arms on this day and have no way to hold my other child. (And now I'm not even fighting back the tears; crying in public - not a first for me unfortunately.) I don't know what to do with myself on this day besides just wishing for I t to pass. Hubs got up with Jack this morning and let me sleep in. Then I took a loooong shower and it was glorious. That's exactly what I said I wanted for Mothers Day. And that's what I got. But what I truly want is to somehow change the past. I want to have both my babies in my arms. I want to not have gone through what we went through. I want to not have a day that reminds me every second of what I am missing. I want to really truly feel at peace. Hubs can't give me that. And he doesn't even know I feel like this. We rarely talk about Petey anymore. I haven't said his name out loud since August when I told it to my friend for the first time on the anniversary of his due date and I can't even remember the last time Hubs and I said it to each other. I don't know where he stands on grieving our first child. There's so much to do and think about and focus on now with our living child. And I wouldn't change that for the world. I just wish I could change the past. To clarify: not the decision to terminate, as I still know that was the right decision for us, just to change what happened, period. But I can't and I never will and I have to find a way to live with that. Most days I do okay. Today is not one of those days. Today the tears are slowly rolling down my cheeks as all the sweet happy families pass me by. And that's my reality right now. That's how Mothers Day effects me. Maybe before next Mothers Day I'll find a way to figure out how to not let the past take over my present.<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com1tag:blogger.com,1999:blog-2898157299165118892.post-4675949516896255852017-04-12T18:14:00.002-04:002017-05-23T01:02:28.701-04:00Hand Foot Mouth Disease in Adults (Day-to-day)So here's something fun: I caught hand/foot/mouth disease from my kid. Uggggghhhhh. I didn't know much about it before but have since learned it is a BITCH. And it's super contagious. And of course he caught it after only being at a new daycare for TWO DAYS.<br />
There's tons of internet info on HFMD in kids but not as much in adults because they don't always get it. (Lucky me!) So I've decided to keep a daily log of every strange gross detail in case others go searching like I did.<br />
<br />
<u><b>Before I knew I was sick</b></u><br />
I was taking care of Jack 24/7 while he was sick with HFM because Hubs was traveling for work. Sleeping was terrible for many days because he was waking up SO OFTEN and I was spending a lot of time "sleeping" in a chair because he couldn't sleep unless I was holding him. Therefore, I was exhausted, getting very little sleep, and I started feeling like I was getting a cold. Not surprising. I started taking DayQuil around the clock and just continued feeling under the weather the whole time I was nursing little man back to health. After about a week he got better, his blisters scabbed over and he was mostly back to normal. Hooray! And then the fun started... <br />
<br />
<u><b>Day 1 (Thursday)</b></u><br />
I woke up with an extremely sore throat and was really run down all day. Low energy, no appetite, body aches, headache, chills. I assumed the HFM had finally gotten the best of me but as the day wore on and my body ached more and more (even becoming sensitive to the touch) I started to wonder if maybe I actually had the flu. Went to bed at 6pm and for the better part of the next two hours, laid in bed super uncomfortable and, though I'm not proud of it, was actually moaning and writhing in pain from the soreness at certain times. Extra Strength Tylenol did nothing.<br />
<br />
<u><b>Day 2 (Friday)</b></u><br />
Awoke feeling like there were knives stabbing my throat. This continued throughout the day every time I tried to swallow or talk. Decided it was better to try not to do either. Body still sore and sensitive to touch but nothing like last night. Then discovered that there were white pus patches all over my throat and tonsils which is indicative of Strep. Great. Decided to head to the doctor since Strep is bacterial and would need antibiotics. They ran a Strep test - negative. They drew blood to test for Mono - negative. I asked again if it could be HFM and they said it was "unlikely as you don't see the white patches in the throat with this disease and you don't have any of the telltale blisters on your body". They sent me home with a shrug and a prescription for more rest and some viscous lidocaine which I was supposed to gargle with every 3 hours to numb the pain and be able to eat. I tried it. It was like trying to gargle with metal-flavored pudding. Impossible, disgusting, and I have no idea how I kept myself from puking. Later in the day I decided instead to squeeze some onto a Q-Tip and dab it on the worst parts of my throat. It dulled the pain for approximately 5 minutes. I gave up. Who needs to eat, right? Popsicles became my new best friend.<br />
Another strange thing this day: my nose. I had like a little leak in the very tips of each nostril where I had never felt snot before, and it would solidify into a translucent but yellow colored crustiness. (Yes I picked it to examine it.) And I kept blowing and cleaning the crusties out throughout the day (I can't call them boogers because they really weren't...hard to explain) but stopped when I realized I was fighting a losing battle and they just kept coming back. Very strange.<br />
Lots more rest and to bed early again. Alternating Advil and Tylenol still was not doing much. <br />
<br />
<u><b>Day 3 (Saturday)</b></u><br />
Again with the stabby knives in my throat. Also, woke completely drenched in sweat. I mean drenched - like I went swimming in the night and then just climbed back into bed. Aaaand...hello blisters on my hands! Ah ha - so it <i>is</i> HFM! So glad I spent most of yesterday in the ER and paid $125 for them to tell me it wasn't HFM. :-/ I almost felt a sense of relief. Not that I wanted to catch it but I was glad to finally know what it was so I could know what to expect. But then I did research on how HFM presents in adults and realized I probably would have preferred something unidentifiable.<br />
Throat sores were so sensitive popsicles were now a lovely distant memory (too much acidity) and ice water and ice cubes were the only possible replacement. Overall body soreness was much better but now I had itchy, pins-and-prickly-needles blisters coming out over all my fingers, hands, feet, scalp, and a couple on my face. The full quarantine began and I spent most of the day in bed alternately sleeping, watching Netflix, and trying not to swallow.<br />
<br />
<u><b>Day 4 (Sunday)</b></u><br />
Throat ever-so-slightly less stabby upon waking. Still hard to swallow but no longer felt like I was eating shards of glass.<br />
Could not use my hands at all due to painful blisters. This was extra fun because it was my son's 2nd birthday today and I was completely useless to help or play with him and had to just be the dirty diseased ragamuffin in the corner salivating over cake I can't eat, and then slinking back upstairs to my bed to hide once presents were opened. Starting to wonder if the Netflix show I'm binge-watching is actually my reality. Hmmm.<br />
Towards end of day I was thinking that maybe I made it through the worst day (! Huzzah!) but then I discovered the rash had spread to both legs (thighs and knees mostly), elbows, ears, one side of my abdomen, back, butt...well, basically everywhere. FML. Bring on the Benedryl. <br />
<br />
<u><b>Day 5 (Monday with pics!)</b></u><br />
Feeling a little better overall. Sore throat still there but not awful every single moment of the day. Discovered I have already lost 8 lbs from my steady diet of ice cubes, ice cream, scrambled eggs and ramen. Quite itchy and Benedryl is doing nothing. Having a hard time walking because even though the blisters on my feet don't look like much they are super uncomfortable when I stand or even move a toe. The ones between the toes are the worst. But hands are getting better (see pics) and I can now sort-of use them again. Thank God.<br />
Took a shower today for the first time since oooh, Friday? Gross. It was tough though. I needed to use cool water because even slightly warm water made the blisters hurt more. And my head was one giant dreadlock so trying to comb that out with hands that barely work was fun. In the end I think I dried my skin out more. Super itchy now and day dreaming about a tub full of calamine lotion.<br />
I feel like I HAVE to be getting better soon, no? But I'm not seeing any evidence of blisters actually popping or oozing so now I'm getting suspicious. Thought they had to pop then crust over before you can start getting better. So I'm still in waiting mode, hoping every night that the next day will be better.<br />
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<br />
It's amazing that the blisters don't look like much in the pics but they hurt so much the last few days!<br />
<br />
<br />
<u><b>Day 6 (Tuesday)</b></u><br />
I can sort of walk again! I can still feel the blisters on my feet and between toes and it's super annoying and itchy but at least they don't hurt as much. And the throat is a bit better. I even ate today! And my fingers are now becoming calloused, which is a good thing because I'm able to use them again. All the itchy rashy parts on my legs, back, side, butt are just staying an itchy rash, not turning into blisters like on my hands and feet. But they<i> </i>are<i> super</i> itchy so we'll see what happens there. Another day of rest and my new Netflix world.<br />
<br />
<u><b>Day 7 (Wednesday)</b></u><br />
I am officially on the mend. I even went out today to Target and the grocery store. Like a real person! My throat is like 80% back to normal so I am eating ALL the things. The callouses on my fingers make everything I touch feel like it has a layer of fuzz on it. I've still got some itchies in some places but for the most part, the places that were just rashy (like my thighs) are starting to clear up and the random single blisters around my body are hardening. Except my toes - those are still bothering me and wearing shoes today was not fabulous. I still have those weird calcifications (I refuse to call them boogers) in the tips of my nose and am resisting the urge to dig 'em out. They're just so weird!! But other than that, I have my energy back and I expect to be back to normal soon! Hurrah!<br />
<br />
<u><b>Conclusion</b></u><br />
That sucked.<br />
<br />
In re-reading everything I wrote just now I noticed that I didn't mention anything about coughing. I had a dry, un-productive cough off and on the whole time I was sick. Sometimes it was just a tickle that I couldn't seem to get rid of and at other times it was kind of a deep chest cough. Strange. That seems to be going away now too.<br />
<br />
If anything else crazy happens I'll update this post again. But for now, I am just keeping my calloused fingers crossed that I don't lose any finger- or toenails over the next month+!<br />
<br />
<br />
--------------------------------------<br />
<br />
<b><i>UPDATE (May 22):</i></b> So more than a month later I'm now starting to lose my first fingernail. Yee-fucking-haw. And the scabs(?)/marks(?) on Jack from his blisters still have not fully disappeared. This is like the sickness that never ends. I also failed to mention that my fingers peeled like crazy in the weeks after and then my feet too - in every place there was a blister. So, like, 100 places. My feet are <i>still</i> peeling a little. Two layers of skin every time. SO weird. I just hope to God I never get this again. Ugh.<br />
<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com11tag:blogger.com,1999:blog-2898157299165118892.post-42729969851072356532016-12-17T16:53:00.004-05:002016-12-17T16:54:43.893-05:00I'm still aliveAnd doing well! We're back in New Hampshire for the holidays. I am SO glad we were able to keep our house here (for now anyway - who knows how long that will be able to last) as I was able to fly back with Jack with just a backpack for the two of us. The flight itself ended up being a horrid experience; he did awesome on the flight on the way out to San Francisco with me and Hubs so I foolishly thought it would be no biggie to fly with him alone back to Boston while Hubs was on a business trip. I thought wrong. As it turns out, the poor guy had an ear infection. The flight must have been excruciating! I ended up holding and rocking him for 5.5 hours straight, singing and trying to get him to sleep and stop crying. It was hell and I honestly thought my arms were going to fall off and my back was going to break. I will never do that again if I can possibly avoid it. I had to beg the woman across the aisle from me just to help me unscrew the cap on my water so I could drink something...ugh. My complaining is not even doing this justice. Suffice to say: It was a completely awful experience. I am already dreading the return flight.<br />
<br />
Besides that though, things in general are good! I have been loving living in CA. There is so much to do. We explore new places multiple times every week and I still have a bucket list a mile long. We found a good nanny and Jack loves her. She does a nanny-share so there are other kids there when he goes which is a really good thing because it's getting him socialization too! And I take him to a gymboree play class every Wed morning which he LOOOOVES. Bubbles, balls, songs, things to play and bounce on, AND other kids?! Yes! He is in heaven. When we get back after the holidays I plan to sign him up for swim lessons too. Besides that, I should probably attempt to make some playdates or something too. So far though, that has not been high on my TO DO list. We were in CA for just over 2 months before flying back here at the very end of November so I really just took that time to get my bearings and find ways to feel comfortable in this brand new place. It's been good though! The weather is SO good for me with my whole prone-to-depression thing so that's huge. And I've been getting tons of exercise with all the walking. I am super spoiled now with being able to just throw Jack in the stroller and walk out the door to anything we could want or need. The location is truly perfect. I have to wonder though, if it's just that the novelty hasn't worn off for me yet, especially since some of that time was spent preparing to come back HERE, and if things will change once we go back in January. Then, we truly LIVE there... I wasn't there long enough to miss anyone yet. (Besides my sister, but that's to be expected.) But when I go back, that will be the real test.<br />
<br />
Things with Hubs are not fantastic. We were in couples counseling together here before we moved but nothing has really come of it. I think I understand a bit more why he has certain issues and where they come from, but that doesn't really help in day-to-day life. This is probably a whole separate post since that is really the base of any sort of unhappiness I'm experiencing in my life right now. But I'm just feeling some disappointment. I feel like we're really disconnected and I don't feel motivated to try to change that. He also travels a TON for this new job and so it's just me and Jack more than 50% of the time. Really, probably more like ~75% of the time. I often sort of feel like a single mom. (A single mom with a great sugar daddy haha.)<br />
<br />
Jack is doing great. We came back to NH when we did since he had lots of doctor appts but unfortunately, his ENT and orthopedics appts had to be rescheduled due to his ear infection. That was a bummer. But we've seen the Pedi and Geneticist so far and things are good. He's healthy! On Monday we'll learn if he needs to have adenoids removed asap. (I assume the answer will be yes.)<br />
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Little guy is waking up from his nap now so I have to run, but there's the quick check in and a smattering of pics. Been loving doing all the Christmas things with him!! Merry Christmas!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Jack loved Santa.</td></tr>
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com3tag:blogger.com,1999:blog-2898157299165118892.post-88996814317789627952016-10-14T17:02:00.003-04:002016-10-14T17:04:58.194-04:00Quick update: ChickinSFSooooo...we moved to California. We've been here about three weeks now and we're loving it so far! We're in the San Francisco Bay Area. It is expensive and it is beautiful. We can walk to everything we need and if we drive 5 mins in one direction we're at the Bay, 20 mins in the other direction we're at the ocean. There's hills and mountains and water and hiking and biking and anything you can think of. Everyone is healthy and active and there is just so much to do. And as you have probably noticed, the novelty has not worn off for me yet :-)<br />
<br />
Jack handled the move like a champ. No issues with a new place, no issues with a 3 hour time-change, no confusion upon waking up in a new room...the kid is amazing. So far, so good.<br />
<br />
My back has held up too! I was concerned because obviously I'm not in PT anymore and with all the unpacking, etc. I wasn't sure how I'd do. I've also been walking a ton every day because the weather is so perfect and there's so many places to walk to. Luckily that has not had a negative impact on my back and I've actually lost a few pounds already just due to the increased exercise. I got a new fitbit the other day and am interested to see how many miles I'm doing now.<br />
<br />
Other big news: Jack started walking yesterday :-D We're soooo proud of him!!! Need to post some pics. In the meantime, he recently turned one and half! My baby is no longer a baby. Wah.<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com5tag:blogger.com,1999:blog-2898157299165118892.post-68599372650543932022016-08-16T22:00:00.001-04:002016-08-16T22:09:23.436-04:002 years.Yesterday was the 2 year mark of when Petey should have been born. His EDD was 8/15/14. It's crazy to me to think that if everything had gone "according to plan" and Petey had been born, we'd have a two-year-old now... and it wouldn't be Jack. I cannot picture that. I don't even want to picture it. It was such a tough thing to go through and I still feel sadness, but we wouldn't be where we are now if that hadn't happened. We wouldn't have our Jack. And I cannot picture life without Jack so it makes me grateful.<br />
<br />
I did have a bit of a cathartic moment yesterday though... One of my best friends decided to play hooky from work and came over for a pool day. While Jack was down for his nap, she and I were just floating in the pool talking and the subject of Petey came up. I talked to her about it. About<i> all </i>of it: the diagnosis, the procedure, the loss, the pain, the feelings I have now about Petey, even just his name. I've never shared his name with anyone in my "real life" before; just here on my blog, and with all my internet friends. I also told her about seeing "my rainbow" and knowing everything was going to be ok (blog post about that <a href="http://diaryofalittlechicken.blogspot.com/2014/08/my-rainbow.html">here</a> if you have no idea what I'm talking about) and then finding out I was PG with Jack. It was really cathartic and pretty ironic that this discussion happened to be on the anniversary of his EDD. I have never talked to anyone IRL about it to this extent, except for my therapist, ha. The fact that I could thoughtfully share without feeling overwhelming emotions or having it spin me into a downward spiral afterwards was huge. It's a turning point for me. It says to me that I've made healthy progress and am in a good place now when it comes to grieving Petey.<br />
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I'm still sad. I still miss him and what could have been. But I am okay. And I feel confident that he is okay. <br />
<br />
I love you my PN <3 <br />
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<tr><td class="tr-caption" style="text-align: center;">(Still appreciate this pic so much JayTee and Cici <3 )</td></tr>
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com2tag:blogger.com,1999:blog-2898157299165118892.post-79586330306896735312016-08-04T13:32:00.003-04:002016-08-04T13:32:27.034-04:00Weight-loss Wednesday (Week 4)Only a day late this week :-) I'm not sure how much longer these weekly check in posts will last. Things are pretty busy around here. I might have to change to once a month.<br />
<br />
<b>Weight loss this week</b>: 1.5 lbs<br />
<br />
<b>Total weight loss so far</b>: 4.5 lbs<br />
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<b>Highlights this week</b>:<br />
<br />
<ul>
<li>Weight is back to where it was a couple weeks ago! I'm thinking maybe that weight "gain" last week was just a bad weigh-in and I'm more just maintaining instead of losing lately.</li>
<li>The consistent back pain has mostly disappeared and now it's more just soreness and tiredness. I'm pretty sure I've officially healed from my latest back injury and am now just working on strengthening during PT. That's a very good thing.</li>
</ul>
<br />
<b>Challenges this week</b>:<br />
<ul>
<li>Very very busy!</li>
<li>Still lots of people around, sometimes hard to plan healthy meals. (But I try when I can.)</li>
</ul>
<br />
<b>Thoughts:</b> Looking forward to going out to CA tomorrow with Hubs for an extra long weekend! Gonna walk all over the city and get acquainted with my new stomping grounds. Exercise will be good!<br />
<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiW1aiWLsLC2k-dOBNsAbgL1LSX5oANtE0CJaqjNlbmRj9pJOAdMkGwH9bCJXjAaJV5fgbEKan63DZD5FjCcySkSOHyg8jRX9sm5MQ-1hHqDcVF_AlGgjidK0DdIygm2Xg-OXjOtczVUcI/s1600/happy+veg+1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiW1aiWLsLC2k-dOBNsAbgL1LSX5oANtE0CJaqjNlbmRj9pJOAdMkGwH9bCJXjAaJV5fgbEKan63DZD5FjCcySkSOHyg8jRX9sm5MQ-1hHqDcVF_AlGgjidK0DdIygm2Xg-OXjOtczVUcI/s1600/happy+veg+1.jpg" /></a></div>
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com3tag:blogger.com,1999:blog-2898157299165118892.post-28905567045381086842016-07-29T11:03:00.001-04:002016-07-29T11:03:06.470-04:00Weight-loss Wednesday (Week 3)...or Friday.<br />
<br />
Oh right, I'm supposed to be losing weight. Forgot about that... Ugh, life just gets in the way! I don't know if other people are like this but for me, when I'm trying to lose weight I have to be almost obsessive about it. I have to be obsessed with food and thinking and planning all the time. When I can devote that amount of energy to it I can do well! And when I can't? Well...<br />
<b><br /></b>
<b>Weight "loss" this week:</b> +1.5 lbs<br />
<b><br /></b>
<b>Weight loss so far</b>: 3 lbs<br />
<br />
<b>Highlights this week:</b> Ummm...made some better choices than I c<i>ould</i> have.<br />
<br />
<b>Challenges this week:</b> Life. This has totally gone on the backburner. There is so much going on! So many people wanting to squeeze in lunches and visits and brunches and pool days before we move. Making good choices consistently has been hard.<br />
<br />
<b>Thoughts</b>: We officially have a townhome in the San Francisco Bay Area. It's real now! Getting excited for this big change and I'm hopeful since we'll be in a new place I can avoid restarting bad eating habits.<br />
<br />
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ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com2tag:blogger.com,1999:blog-2898157299165118892.post-88921796045744609562016-07-21T22:10:00.003-04:002016-07-21T22:12:38.262-04:00Thoughts on still being infertile even after babyI have a friend who writes for an infertility website. She recently asked for "some thoughts on still being infertile after having your first baby". I sent her some. I figured I'd share those thoughts here too: <br />
<blockquote class="tr_bq">
<span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">I
have a one year old son but I am still infertile. That's a hard
realization for me to come to terms with. My husband and I would still
like to add to our family but there are just so many unknowns. It feels
like we'd be setting out on yet another monumental
journey (but this time while carrying a child with special needs,
emotional baggage from years of IF, and lasting sorrow from a prior
late-term loss) and I honestly just don't know if we have it in us. We
are both a bit beaten down now. We don't know how much treatment we'd
need to endure before we *may* be able to have another. We don't know if
we are able to conceive a genetically healthy child. We don't know if
we are "tempting fate" by trying again. We don't know if we are strong
enough to handle it if we get pregnant and then receive bad news again or have
another loss... We just don't know. I don't want to be one-and-done. But I also
don't want to go through hell again. At this point I am not sure which
option scares me more.<br /><br />When I got pregnant the first
time, I remember celebrating finally "beating" infertility. I didn't
realize then that IF was something that stays with you and may never
truly disappear. I do feel like it's become part of my identity and is
not (yet?) just my past; it's still very much a part of both my present
and my future.</span></span></blockquote>
<br />
<span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">I have so many more thoughts but this is what I chose to share. And now I have thoughts about those thoughts. And the overwhelming thought is this: Wow, that's kind of depressing.</span></span><br />
<br />
<span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g"> </span></span> ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com1tag:blogger.com,1999:blog-2898157299165118892.post-87863036139410366342016-07-20T09:47:00.000-04:002016-07-20T09:47:02.059-04:00Weight-loss Wednesday (Week 2)<b>Weight loss this week</b>: 0.5 lbs<br />
<br />
<b>Total weight loss so far</b>: 4.5 lbs<br />
<br />
<b>Highlights this week</b>:<br />
<ul>
<li>Cravings are going away</li>
<li>I'm already noticing the spare tire around my belly is shrinking</li>
</ul>
<br />
<b>Challenges this week</b>:<br />
<ul>
<li>My back sucks and hasn't gotten any better. The only "exercise" I can get is being in the pool. And even then I have to take it <i>really</i> easy. I'm still in PT three times a week.</li>
<li>We had a lot of company this week that made meal planning harder than usual. I am good about planning dinners in advance for the week, ensuring I have leftovers for Jack and for lunches, and then doing my food shopping according to my weekly plan. But with people popping in a lot, that kinda went to shit this week. Honestly, that's how most of the summer tends to go though so maybe I need to focus on just making the best choices I can when I have the opportunity to make them.</li>
</ul>
<br />
<b>Thoughts:</b> A half pound weight loss is not super motivating but my overall in just 2 weeks is almost 5 pounds which is pretty great. I think I just need to focus on that.<br />
Also, it's kind of neat that the last time I focused on losing weight (before I got PG with Jack), my biggest challenge was planning meals in advance and then cooking them. Now, that is no longer a challenge! Once Jack came along I HAD to do that whether I wanted to or not and now I'm quite good at it! That should likely make my weight loss even easier this time around.<br />
<br />
Week 2 is in the books!<br />
<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com1tag:blogger.com,1999:blog-2898157299165118892.post-331486167725774302016-07-13T09:11:00.002-04:002016-07-13T09:11:30.816-04:00Weight-loss Wednesday (Week 1)Alrighty. I'm on board the weight loss train again. And it's been a very successful first week! More about that in a minute. First, some accountability:<br />
<blockquote class="tr_bq">
<b>Starting weight:</b> 203 lbs (ugh)<br />
<b>First goal:</b> 180 lbs<br />
<b>Final goal</b> (maybe someday?): 155 lbs </blockquote>
I hate that I got over 200 again. I hate to say it but something about that number makes me feel bad about myself. Unfortunately it wasn't even seeing the scale hit my magical "you are fat" number that motivated me to start caring again: It's the fact that my back went out on me. Again.<br />
<br />
It went out on me on the last day of June. My parents were already on their way up from Florida for the summer so luckily they arrived the very next day and could take care of Jack. I was OUT. As in: needed a walker/laying all day in bed/could barely wipe myself after using the bathroom kind of out. I was so thankful my parents were here and could take care of Jack as I slowly got better over the next week and a half and was able to do more things bit by bit. I was feeling better so I "released" my parents and just sort of assumed it was a fluke. But the following week it started getting bad on me again and one afternoon I was sitting on the floor playing with Jack and went to get up and I couldn't. I could barely move and I could tell (because I'd felt that feeling before) that if I DID move my back would go out on me again. It was SO SCARY. I was stuck there just praying that I would be able to keep Jack beside me and occupied long enough until my sister was able to come over after work to help me. I was scared to death he would crawl too far away from me and get into something or try to climb the stairs and I wouldn't be able to help him. THAT is the straw that broke the camel's back (or rather, my back, heh) and convinced me it's past time to do something about my weight.<br />
<br />
Because the thing is, I was surprised to be having this back pain again. I hadn't had issues the last 3 months since I "graduated" from physical therapy, I was feeling pretty good physically, I was even back into zumba every week again! BUT, I was also eating like crap again. I did not care what went into my mouth and I had gained about 5 lbs over the last few months. If it wasn't the weight gain that caused my back to go out, I don't know what it was. And I can NOT chance feeling so scared and vulnerable like that again if I have the power to stop it. Since apparently, I haven't felt like <i>I</i> am a good enough reason for me to take better care of myself physically, I have to do it for Jack. He needs a mom who can take care of him and run around and play with him without having to worry her body is going to give out on her. And since we're moving soon to a place where I won't have a sister or a mother in law or a friend I can just call up and say "I need you to come over right now", it is even more important for me to do everything within my power to keep that from ever happening again.<br />
<br />
SO, here we go with check in #1!<br />
<br />
<br />
<u><b>WEEK 1 CHECK IN</b></u><br />
<br />
<b>Weight loss this week</b>: 4 lbs!<br />
<br />
<b>Total weight loss so far</b>: 4 lbs<br />
<br />
<b>Highlights this week</b>:<br />
<ul>
<li>Highly motivated. </li>
<li>Joined MyFitnessPal again and am back to tracking everything I eat. Goals are keeping calories at 1500 per day, sugar and sodium intake low, and eating enough fiber and protein.</li>
<li>Back under 200 lbs again already :-) </li>
</ul>
<b>Challenges this week</b>:<br />
<ul>
<li>Sugar detox. That's never fun. </li>
<li>My back really limits any kind of physical activity right now beyond normal daily movement. The physical therapist told me I have a herniated disc and also one of my legs/hips was out of alignment which shifted all my vertebrae. She was able to put me back in alignment but I'll still have to nurse this herniated disc for a while through PT twice a week for the forseeable future. Once my back is stronger again I'll be able to add exercise in veeeery slowly. That's frustrating.</li>
</ul>
<br />
<b>Thoughts:</b> I realize that 4 lbs in a week is a fluke because it's likely more water weight than anything but I don't care; it's good motivation. Seeing that scale back into the 190s so quickly is very helpful for me. I'm looking forward to this next week too and seeing that total weight loss number grow.<br />
<br />
<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com2tag:blogger.com,1999:blog-2898157299165118892.post-15949789053893711922016-07-10T13:39:00.004-04:002016-07-10T13:42:00.146-04:00Little dude is 15 months!Since I just wrote a huge update the other day I will spare you and just post the update pic :-)<br />
<br />
I decided that once Jack turned a year I'd keep up the official update pics every 3 months until he turns two.<br />
<br />
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<br />
Oh, I lied: One thing I didn't update on last time is my hubby. He did have his back surgery in April and while recovery was tough (for both of us) for a couple months he is doing SO MUCH BETTER now. It is a HUGE relief. He still has limitations but he can actively help care for Jack now which has made a huge difference in our lives. I seriously want to cry, it's such a big deal for us. Yay.<br />
<br />
And I am actively losing weight! It's only been less than a week but I'm already down a few pounds and am heading in the right direction. I think I'll post "weight-loss wednesday" check ins starting this week. :-)<br />
<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com4tag:blogger.com,1999:blog-2898157299165118892.post-2784827235973394112016-07-07T13:59:00.004-04:002016-07-07T13:59:58.259-04:00San Francisco bound!Well, it's happening. This east coast gal is going to become a west coast gal in the next couple months. Does this mean I need to retire the "ChickinNH" name? "ChickinSF" just doesn't look right...<br />
<br />
Hubs and I officially decided he should take this promotion (it's a BIG step in his career) and so to San Francisco we go! I'm choosing to look at it as a new adventure and maybe (hopefully) as a fresh new start. It's no secret I've fought depression for the last few years and it was certainly a battle after Jack was born with the PPD/PPA but things are pretty decent overall these days. I'm still on Lexapro and occasionally still see my therapist but things feel under control now. What is NOT under control is my weight. I'm 10 lbs heavier than I was when I got PG with Jack and I've decided it's time to do something about it. I'm hopeful that this move will help me with weight loss. I've developed bad habits that I need to break and this big life change can help me start fresh with good habits. The sun, the water, the hiking, the proximity to fresh produce and walking trails... all of it should be good for me. And what's also good is that this will likely only be a 2 year move (tops). The new initiative my hubby is undertaking should be completed within 2 years so if we want to move back to the Boston area then, we can. And I assume we will since we both grew up here and all our family and many friends are here. Another good thing is that we will still be able to keep a residence here in NH during that time as well since we will be back and forth quite a bit, mainly for Jack's dr. appts. It's taken a full year to find the right specialists for him so I do not plan to move all his care to CA just to (likely) move it back to Boston again. Barring any issues arising during the next couple years, we should only need check ups once per year with most of his doctors so I will try to lump those visits together when I can and just come back east here and there over the next couple years.<br />
<br />
Speaking of Jack medical news; he is doing great. He FINALLY had his MRI and overall it was good news. No compression at the base of his spine, so no surgery needed at this time. Also, no hydrocephalus found in his brain. Huge relief! They did find a potential issue with swelling of the sheaths surrounding his optic nerves though so we were referred to an Ophthalmologist for some testing. Luckily they didn't find evidence of damage to the optic nerves themselves (that would cause irreparable blindness) but they weren't sure if this was an issue that was getting worse or if he was born with the swelling due to intracranial pressure and it's actually getting better. So we went back to the specialist a month later for repeat testing and found there as been no change. Overall, good news. We'll need to go back again in 3 months, and Jack's Neurosurgeon also ordered a repeat MRI for 2 months from now to ensure everything is still okay as they did find ventriculomegaly (enlarged ventricles of the brain, common with Achon), and though his nerves aren't currently being compressed, one of the vertebrae in his neck juts out at a funny angle so they need to keep an eye on it. Hopefully everything will be fine.<br />
<br />
He's doing awesome though. Within the last month he started sitting on his own and pulling to stand and we are just so proud of him. He is so happy and smiley and I am just totally in love. His new challenge as of today is trying to climb up the stairs. Uh oh.<br />
<br />
Here are some pics of him doing his favorite things: <br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0Q_Xy3B1kWw5qXPXzPOuazyUX1uVILBWtVUI2PieoM0HUZmOufHaPl4BwK3SHNW3WUQMqgUyv-5nY3pRQZBpfuGDTmXwKct3Jk_Q7wZi_MpEW5P3Cn8mrXAgpoVkMq584HnNWOMWe5DY/s1600/jack+swinging+april+2016.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0Q_Xy3B1kWw5qXPXzPOuazyUX1uVILBWtVUI2PieoM0HUZmOufHaPl4BwK3SHNW3WUQMqgUyv-5nY3pRQZBpfuGDTmXwKct3Jk_Q7wZi_MpEW5P3Cn8mrXAgpoVkMq584HnNWOMWe5DY/s400/jack+swinging+april+2016.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Swinging!</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIYMAAxrUeu55G6RKy6LCLlz35fMFnG-jh5_rBGz5wy-eN0n4_HzIWjqtqkNkauWN5Xr0rLaXX7HOubMjKBGsL-WlY-y-DdTqjl60OVrm5yuaVz80BMs9_cKH6THMLpe-Q9PVV_LJ9IP8/s1600/jack+in+pool+2016.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIYMAAxrUeu55G6RKy6LCLlz35fMFnG-jh5_rBGz5wy-eN0n4_HzIWjqtqkNkauWN5Xr0rLaXX7HOubMjKBGsL-WlY-y-DdTqjl60OVrm5yuaVz80BMs9_cKH6THMLpe-Q9PVV_LJ9IP8/s400/jack+in+pool+2016.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Pool time</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNrV5KSbAVZ08GcR3NZi4V7mRuHGUQWQYAx94eADFuATzyWKYphRIqIZmRuWOaHIpypF2spj7cUQ3q8Ib3Uxu09NVF8JRSldK4nEU7fcH5n5w7qy6pOkwrf4qA04vAMnXs2PCEdkSU4ag/s1600/jack+with+balloon+14.5+mos.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNrV5KSbAVZ08GcR3NZi4V7mRuHGUQWQYAx94eADFuATzyWKYphRIqIZmRuWOaHIpypF2spj7cUQ3q8Ib3Uxu09NVF8JRSldK4nEU7fcH5n5w7qy6pOkwrf4qA04vAMnXs2PCEdkSU4ag/s400/jack+with+balloon+14.5+mos.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Playing with balloons</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnErAsYSsqOOyeVAT192Q1C4pG70NifeaTDgY9oW3ZliToMkPUTaz-fcTPG0x0ztSsmXS-Q9hjUYl9cwP1cps1AZz0FWWQESANpNdfBInlhOCjxwI-Xe0GDOUE2j0BMQ9NLwbbJlHSSdI/s1600/nakie+jack+15+mos.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnErAsYSsqOOyeVAT192Q1C4pG70NifeaTDgY9oW3ZliToMkPUTaz-fcTPG0x0ztSsmXS-Q9hjUYl9cwP1cps1AZz0FWWQESANpNdfBInlhOCjxwI-Xe0GDOUE2j0BMQ9NLwbbJlHSSdI/s320/nakie+jack+15+mos.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Being naked (probably his most favorite thing).</td></tr>
</tbody></table>
<br />
He has such a personality and is totally a toddler now (complete with attitude). He'll be 15 months in a couple days and I'll post the update when I have it.<br />
<br />
We also were lucky enough to go to the Annual LPA (Little People of America) Convention this past weekend as it just happened to be here in Boston this year! It was a really wonderful and unique experience to be able to see so many little people of all sizes, shapes, and abilities, and to truly understand that we are part of something so much bigger than just our little world. Pun intended :-P<br />
We plan to go again in future years but likely not until Jack is old enough to start to get something out of it. Many little people meet their best friends and future spouses through LPA so we definitely want it to be a part of our and Jack's lives. Here's a pic! Final attendance was more than 2,200 from all across the US and Canada!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV3pnoimlyei-qipf_VicOSvJGsKYcVjTrOQUjnYginMjSFg_3frJCm8dtEBu-6YmRVQI-4Iu3_WXHCC-MMNDxtEq44-xkc5zn0PWfncRgVzCXNU7uWNdb3kcJk6U_oJfm2WLZuZNgJYY/s1600/LPA+Convention+July+2016.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV3pnoimlyei-qipf_VicOSvJGsKYcVjTrOQUjnYginMjSFg_3frJCm8dtEBu-6YmRVQI-4Iu3_WXHCC-MMNDxtEq44-xkc5zn0PWfncRgVzCXNU7uWNdb3kcJk6U_oJfm2WLZuZNgJYY/s400/LPA+Convention+July+2016.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">In case you are wondering, we did not make it into the picture due to a certain cranky baby who shall remain nameless.</td></tr>
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<br />So there's my update! In a nutshell: Jack is doing good, Hubs and I are doing good, we're about to start planning/packing for our big move, and I'm going to start focusing again on losing weight. Don't be surprised if you start to see some diet/exercise check in posts again soon!<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com8tag:blogger.com,1999:blog-2898157299165118892.post-28596338757476259562016-04-15T10:45:00.000-04:002016-04-15T10:45:21.979-04:00Jack is One :-)My baby is no longer a baby. He turned one last weekend! <br />
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I really should have taken more pictures during the party but here are a few. He had an awesome time and was such a ham. He loooooved all the attention. I think I'm in trouble. <br />
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The week before we had his cake smash photoshoot and it was adorable. He is such a cutie.<br />
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<tr><td class="tr-caption" style="text-align: center;">"WHY AM I SO STICKY?!!!!!"</td></tr>
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I can't believe my little muffin is one. It had been quite a year. A life-changing, eye-opening, challenging, amazing whirlwind of a year. I love this little guy more than I know how to express. My life has changed so so much in one short year.<br />
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And Jack really is doing great. He's so active now and is starting to try to pull up on things (not quite there yet though). He's such a happy and loving little guy and is just a little ray of sunshine.<br />
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In medical related news, Jack has his first ear infection (poor guy) so the MRI that was re-re-re-scheduled for this week had to be postponed YET again until the end of May. This whole situation with the MRI is almost comical now. Hopefully someday it will actually <i>happen</i>, haha, and all will go well there. And we have about a billion dr appts lined up because almost all his specialists like to see him around a year to ensure everything's still looking good. I don't anticipate any new issues with anything so I hope I'm right. It's just that pesky MRI I still have some anxiety about since it has been pushed off SO many times. I'm just hoping he hasn't had spinal compression this whole time and we haven't known it... The MRI will also examine his brain to make sure everything's good there and he's not dealing with any major hydrocephalus (very common with Achon kids) or any other issues. Overall though he seems healthy and happy so I'm feeling positive in regards to all his medical stuff.<br />
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In general I'm feeling pretty good/positive. I think the change to my birth control pills has really helped to even
me out. Finding the right BCP plus the Lexapro seems to be doing the
trick! That is a big relief. I've only been going to therapy every other week or so now, and my very last physical therapy session is next week! Hoorah!! My back is SO MUCH BETTER now. It's incredible. I still get tired and have some soreness but I no longer have pain. It's amazing.<br />
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Hubs, on the other hand, is scheduled for his second back surgery next week. I am REALLY hoping it helps to alleviate some of his pain. I honestly don't know how the poor guy gets through every day. He <i>needs</i> to get some relief. Recovery should be about 1-2 weeks in bed, then 1-2 weeks of taking it very easy, and then at least another month of picking up nothing heavier than a gallon of milk. Then he'll have 2 months of physical therapy. I'm sure the surgery and recovery will go fine, it will just be a bit harder on me since I have Jack and now will need to care for Hubs. Once he's better we're still planning to put the house on the market too (just in case life wasn't crazy enough already). We're actually not sure where we're going yet though... We needed to sell this house to move closer to Boston so he doesn't have such an awful commute, but now things have potentially changed. He got a big promotion. One that he has been working towards for years and years. I'm very very proud of him but at the same time it means we <i>may</i> be picking up and moving to San Francisco. Yeah. Sooooo, there's a lot going on. We're hoping to know for sure by the end of next week what our future will be. Or at least, where this future will take place. Thanks to the last few years I am no stranger to being in limbo and not knowing which way my life will go so I feel like this is just one more potential shift in this crazy life of ours. We'll see!<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com9tag:blogger.com,1999:blog-2898157299165118892.post-90482502960670948512016-03-18T11:54:00.000-04:002016-03-18T11:54:12.650-04:00On this day...On this day 1 year ago: We found out Jack had dwarfism. I was 36 weeks pregnant.<br />
On this day 2 years ago: We found out Petey had so many birth defects he likely would not make it. I was 19 weeks pregnant.<br />
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Two years in a row we were at MFM on this day, learning the fate of the child I was carrying. Crying, wondering how this could be our reality.<br />
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March 17 & 18 are loaded days for me. Last year was so surreal to be in the same place with the same doctors as the previous year. It was a huge relief to hear that there was a low chance of Jack's dwarfism being lethal but I'm not sure it eased much of the anxiety and the overall sense of doom and deja vu. I've been dreading the days leading up to today and yesterday. I wonder how many years it will take for me to NOT have my past be my prevailing thought leading up to these days. I wonder if that will <i>ever</i> fully go away.<br />
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I feel ashamed when I think back to one year ago. When the OB told me the ultrasound revealed that he had dwarfism I was in shock. I was scared, I was confused, I felt cursed, I felt...disappointed. I didn't want it to be true. I didn't want to be carrying a little person. I barely even knew what dwarfism was. I just knew it wasn't "NORMAL". And ALL I wanted was to be normal. After being "special" due to years of infertility, after being "special" due to IVF, after being "special" due to loss, and due to choosing TFMR...I was in too many categories outside the norm. I just wanted to be <i>normal.</i> I wanted one thing to go right. I wanted to put all of these hardships in my past and be able to say to the world, "yes I overcame challenges and it was hard but it didn't break me, and look at me now, I'm just like you - just a mom with a son". But receiving his dwarfism diagnosis confirmed that I, and my family, would <i>never</i> be "normal". I could have hid my past from the world if I chose to but I can't hide this. My son is a dwarf. A year later I still haven't sorted out all of my feelings related to that. I know that I'm afraid for what the future holds for him. I didn't want him to be different but he is. And will always be. We will need to figure out how that looks and what that means for him. But what I do know is that I love him. More than I ever even thought possible. And I just want for him to be happy. There are so many unknowns when it comes to his (and our) future but I just want him to be happy in life.<br />
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Our lives changed forever on this day last year. And it changed forever on this day two years ago. But I'm glad to report that so far, <b>today</b> has been a rather ordinary day :-)<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com5tag:blogger.com,1999:blog-2898157299165118892.post-9463653762675980412016-03-16T11:27:00.001-04:002016-03-16T11:30:59.619-04:00Jack: 11 MonthsEleven! (Less than) One month to go until my baby is a YEAR old! How in the hell did that happen?!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tyE3PBEfF6JJXvEmXrSO6O5SDH0PuZYxslAVMy1HvMkY2T-ws1f3Io8VMDv7-KvdvzCvlPI79zAjKrigRFu4F8HsrDdBfXW9GzW2iAQV_MwEt37FrsMfmCGnQe_4OaUQk0GC4Yk7xYw/s1600/Jack+11+Month+Update.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5tyE3PBEfF6JJXvEmXrSO6O5SDH0PuZYxslAVMy1HvMkY2T-ws1f3Io8VMDv7-KvdvzCvlPI79zAjKrigRFu4F8HsrDdBfXW9GzW2iAQV_MwEt37FrsMfmCGnQe_4OaUQk0GC4Yk7xYw/s640/Jack+11+Month+Update.jpg" width="640" /></a></div>
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He is doing awesome as usual. He was supposed to have his MRI (the one that has already been rescheduled twice) yesterday but we had to reschedule AGAIN because Jack's getting over a cold and he had a high fever. Apparently no anesthesia within two weeks of a fever. I'm beginning to get anxiety about the whole thing now. It's been pushed off for so long that I feel like my brain is now becoming convinced that either it's a really bad idea so fate keeps intercepting, or that it's becoming dire for him to get it since it's been pushed off so long! Ugh. Post partum hormones are still making me a crazy person.<br />
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Speaking of; I'm still on Lexapro and it's helped. Still not sure if I need to either up my dose or change meds but I saw my PCP last month and mentioned my crazy mood swings and depressive states and so on and so on, and we decided I should try a new birth control pill - one that has increasing levels of hormones each of the three weeks instead of the same amount of hormone throughout the month. I just finished the first pack and I do think it helped me stay a little more even this month! Yay. I'm hoping that all I needed was a BCP change. We'll see how this next month goes.<br />
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In other med-related news, I stopped Metformin about 4 months ago. When I started it about 3 years ago it was to help me ovulate (it didn't, if you recall). Then I stayed on it because it helped me feel a little more even with my moods, THEN I stayed on it through pregnancy because there are studies showing that it can help women with PCOS produce more milk with breastfeeding (Yep, didn't do that either). Finally, I was afraid to get off of it because I had been on it so long and didn't know if I'd developed insulin resistance during that time OR if I'd have even worse mood swings since I was already experiencing PPD/PPA. However, one day I was just like, "why the F am I still on this?!" So with my PCP's approval, I stopped. And I've had no problems. We checked my A1C and it's been totally normal, I don't have insulin resistance, I don't have any added crazy mood swings, and, bonus: I finally poop like a normal human again!! Looks like I was on a med for the last three years that did absolutely nothing for me. Humph.<br />
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Oh, and did I also mention that I'm now apparently allergic to Penicillin? And now also having reactions to eating eggs. Awesome. Apparently this is a thing: After pregnancy, a woman can develop allergies to things to which she was not previously allergic. That's some bullshit right there.<br />
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Nothing else really going on. I'm planning Jack's bday party. I cannot WAIT for his smash cake photosession :-D And we're flying my parents in for about a week so they can be here for it too. They miss him SO MUCH. I don't blame them. He is pretty much awesome and irresistibly cute. We're also starting to prep the house to put it on the market and starting to look at houses closer to Boston so Hubs' commute can be shorter. He's going to need another back surgery very soon so we'll probably do all the house stuff after he recovers. I think we're looking at late April/early May.<br />
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Anywho, that's what's going on over here! Here are a bunch of Jack pics because I can't resist:<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9ieApb9xLT29Cr2d9OJlGXO3hOxCrZcwVetrcm39nV3ZyiH42fxg-UPEWBH7Oy4JJRip7a9Df6itr6mDHjAUo2J4IOd4smPbKgvYPPWwqdN3OS_WDIn6SCJ4dw-OkDu_FocbQBwn-ykI/s1600/IMG_9050.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9ieApb9xLT29Cr2d9OJlGXO3hOxCrZcwVetrcm39nV3ZyiH42fxg-UPEWBH7Oy4JJRip7a9Df6itr6mDHjAUo2J4IOd4smPbKgvYPPWwqdN3OS_WDIn6SCJ4dw-OkDu_FocbQBwn-ykI/s320/IMG_9050.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hi! (trying to make an escape)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4ShdO3oKxrI2PmPfampEZAzj95D5jBTaXVl3mHtX5G15UI6clmMUFnrHtn3WwD_67gRcCkn14Vr1XzkzQTu2O0AGqkcxkvWae8r9NY7MZDfsvKIAHg7AxY4Rfe4iAWIHqCRRJURfPXqY/s1600/IMG_9059.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4ShdO3oKxrI2PmPfampEZAzj95D5jBTaXVl3mHtX5G15UI6clmMUFnrHtn3WwD_67gRcCkn14Vr1XzkzQTu2O0AGqkcxkvWae8r9NY7MZDfsvKIAHg7AxY4Rfe4iAWIHqCRRJURfPXqY/s320/IMG_9059.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Loves to feed himself!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAomlB9pggdrrBYSx_smU_mB7Rkeb59-uReuSV0lcisF9FJViy675EmHbcujb0ePWSLGHH37m8k0o4yME6IVCyXBREeyHug7oA1mm2X2DgEHNZJOIxD6NUz0qhGEja5zHYtf6XiXOKJ7w/s1600/IMG_9082.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAomlB9pggdrrBYSx_smU_mB7Rkeb59-uReuSV0lcisF9FJViy675EmHbcujb0ePWSLGHH37m8k0o4yME6IVCyXBREeyHug7oA1mm2X2DgEHNZJOIxD6NUz0qhGEja5zHYtf6XiXOKJ7w/s320/IMG_9082.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My phone is his favorite thing</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSFgRTxkc_5ggHvL0nOOuZBxVxAVm2XQvTERoRElZtd4W1eD0F2ZVfYBaUcSSs-RwhNNKCijSNKWwtREURDdHvigF4Ms1Uy9J9A5qYP_otAPXa-pJd-C1wISzGSXqK35qZJvuj6po8sR0/s1600/IMG_9215.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSFgRTxkc_5ggHvL0nOOuZBxVxAVm2XQvTERoRElZtd4W1eD0F2ZVfYBaUcSSs-RwhNNKCijSNKWwtREURDdHvigF4Ms1Uy9J9A5qYP_otAPXa-pJd-C1wISzGSXqK35qZJvuj6po8sR0/s320/IMG_9215.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This is how he plays with toys since he can't sit on his own yet.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9FnMNtcOwYvVM90CiMyblx6BaCwvV6bpmi1QM0Mrs5eApUS1bV-fgOaV4YKRLhYvMlh0hEtXg6DDCR3wMiEWgHrpPOpOS2GMqIk5Yey7GOZhlKYJAWAAxwzqSyIVWGImgzIT_JVKBa58/s1600/IMG_9247.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9FnMNtcOwYvVM90CiMyblx6BaCwvV6bpmi1QM0Mrs5eApUS1bV-fgOaV4YKRLhYvMlh0hEtXg6DDCR3wMiEWgHrpPOpOS2GMqIk5Yey7GOZhlKYJAWAAxwzqSyIVWGImgzIT_JVKBa58/s320/IMG_9247.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Flexible!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCTo-VoxqKZOEKwUKkTFsmIHf8FV4boi3VSzMbaHpie1nBY_2rhkJrN-mIh7sprr9fN9gi55NmS7JlTr23DKE61yneVwVP152VzASJaMMKcfFmOr40RqVOFMSafjbA3QVkFBzFB-K6Rvo/s1600/IMG_9263.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCTo-VoxqKZOEKwUKkTFsmIHf8FV4boi3VSzMbaHpie1nBY_2rhkJrN-mIh7sprr9fN9gi55NmS7JlTr23DKE61yneVwVP152VzASJaMMKcfFmOr40RqVOFMSafjbA3QVkFBzFB-K6Rvo/s320/IMG_9263.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I don't think he could be cuter.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSxqWoRboKe1yw0d9eWD8rOfz5xNH2lBZsq8fw542rMKlBIRE7VJJTu0Vl5wEDa4vpOSBEfED6sFQWTogcc5DajuDygCDbtC_ENKN4O1RvwDvcWotCOfvv0gAnMiq5_TOdxuKyEWwuFiw/s1600/IMG_9264.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSxqWoRboKe1yw0d9eWD8rOfz5xNH2lBZsq8fw542rMKlBIRE7VJJTu0Vl5wEDa4vpOSBEfED6sFQWTogcc5DajuDygCDbtC_ENKN4O1RvwDvcWotCOfvv0gAnMiq5_TOdxuKyEWwuFiw/s320/IMG_9264.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Had a playdate and he LOVED this car. We're getting it for him in blue for his bday (minus the wine).</td></tr>
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com3tag:blogger.com,1999:blog-2898157299165118892.post-43118276154045535822016-02-16T17:26:00.004-05:002016-02-16T19:46:53.215-05:00Jack: 10 Months<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHuOb17dRWc7dlAan98GjORR3AjBG2xUaZwHlSe_O0NZDo2gm_jxF5eFuPo29y3Yukh9XlhnG8ElZxOWSYptd_jSauZ5U1I77c8x3vJpomWPkJ-YzuFsRJhBWdTVlUin4T5eheI8LUw_o/s1600/Jack+10+Month+Update.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHuOb17dRWc7dlAan98GjORR3AjBG2xUaZwHlSe_O0NZDo2gm_jxF5eFuPo29y3Yukh9XlhnG8ElZxOWSYptd_jSauZ5U1I77c8x3vJpomWPkJ-YzuFsRJhBWdTVlUin4T5eheI8LUw_o/s640/Jack+10+Month+Update.jpg" width="640" /></a></div>
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He is such a little lovebug. This is the first month that he wouldn't sit still for his picture which is a very good thing :-) He's gaining more and more core strength and is now able to hold himself in the sitting position for a handful of seconds at a time. This is a HUGE milestone. He's always on the move and is generally just such a happy little guy. Argh I love him.<br />
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I'm doing okay. Still in therapy, still in physical therapy. Currently reading a book called "Keys to Unlocking Depression", written by my therapist's apparent mentor. I like him though. I've also done some hypnosis sessions with him and I like his positive point of view. I'm trying not to hibernate as much as I want to this winter and have been making a point to get out of the house and see friends and have playdates with other moms so that I have a reason to put on pants and hopefully don't forget how to speak English. I'm looking forward to spring.<br />
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Hubs isn't great. We learned he's definitely going to need another back surgery. This time a spinal fusion. He's in immense pain and most days I need to help him put on socks and pants... it's become a major part of our lives. He is honestly one step away from disabled at this point and I am both amazed and grateful that he's still able to go into work every day. He works in Boston though which means he's spending at least 3 hours driving every day which I'm sure is not helping the back situation. This spring we're still planning to put the house on the market and move closer to the city. We're at the point where we'll do anything to alleviate some of this pain for him. We're even considering renting an apartment down there so that he doesn't have to drive EVERY day. Sigh. It's no good right now.<br />
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Besides that, I'm starting to plan Jack's birthday party! I honestly cannot believe he'll be turning one before long. This has been the fastest almost-year and also the longest and the hardest and the most wonderful and the most challenging... This year I have learned that what I pictured life to be like with a child is drastically different in real life. I had a LOT of time to think about it and prepare and hope and pray and never did I think it would be like this. It's both amazing and the hardest job in the world. I'm thankful every minute of the day and I'm exhausted every minute of the day. I don't doubt that it is likely very different for me than most other moms since I have a son with some special needs and a more-or-less disabled husband so things are much more challenging than I thought they would be but they are also wonderful.<br />
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We're very up in the air about what will happen regarding future family. We always wanted multiple children - Hubs always said 2 or 3, I always said 3 or 4 - but now, after what we've been through, what we're both going through physically (AND mentally), and with all of Jack's issues, we just don't know anymore. We might be one and done. We might adopt. We might try again. I really don't know. Due to significant genetic conditions with my pregnancies with both Jack and Petey, Hubs and I will definitely need to have some genetic testing done to determine our risks with another pregnancy and if we choose to use our frosties, will need PGD. I am so not ready to face all of that. Months ago I told myself I would start to focus on that after the first of the year. Then January came and went and I still wasn't ready. Once into February I made myself call and make an appointment to see a genetic counselor. I told myself the hardest part was just making the call. It wasn't. I made the call. I set up the appointment. I made arrangements for medical records from both pregnancies and from Jack's diagnostic testing to be sent. And every single day I had anxiety about it. One day last week I had a full blown panic attack. I went in to talk to my therapist and realized that although I was telling myself to be ready, I'm just not. I called and cancelled the appointment. It was supposed to be today. I'm so relieved it wasn't. Maybe I'll revisit it in a month or two. Maybe not. I'll have to see how I feel. I just need SOMETHING besides family matters to be my project. I need to try to find myself again and what *I* like to do and what *I* want to do... The last 4 years have been devoted to TTC, to pregnancies, to grief, to navigating this new world as a mom and this unknown world of dwarfism. I have to do something for ME again before I can be okay devoting myself to the TTC rollercoaster again.<br />
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Anywho, that's what's going on with me. Baby's waking up so I have to go. I will leave you with some sweet pictures of my favorite guy :-)<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_GeNAy090K2YeSbvy0YBeqESZ7pB7REVGN5sRsZFTKv9zBAclqp5yhCjgAXJjoV_EGru7PpBnQYdI2ZfqVBcrz7FC5zUmdLwReRm8qY93BrArFHy47J12XP0dD2LuZNQ3C6UZbfb1roI/s1600/bookworm.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_GeNAy090K2YeSbvy0YBeqESZ7pB7REVGN5sRsZFTKv9zBAclqp5yhCjgAXJjoV_EGru7PpBnQYdI2ZfqVBcrz7FC5zUmdLwReRm8qY93BrArFHy47J12XP0dD2LuZNQ3C6UZbfb1roI/s400/bookworm.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My little bookworm</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB9JQb9bU1IifkU8faHGVmO9SQXDMVzarOspUU9kBi3ppuj6c7pp_3LXYSeJ8DfHoRgngOwf5ZBO0_GP6ePe34SPsSaCfwyqRFghtfdogjrs_8yDafrs9CDU8V4GN21gPGvXRkDVhEB-0/s1600/crawling.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB9JQb9bU1IifkU8faHGVmO9SQXDMVzarOspUU9kBi3ppuj6c7pp_3LXYSeJ8DfHoRgngOwf5ZBO0_GP6ePe34SPsSaCfwyqRFghtfdogjrs_8yDafrs9CDU8V4GN21gPGvXRkDVhEB-0/s400/crawling.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Crawling away</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjY-SlZQHAq635CynuV9k6g5KC6ptLkyhTqDrqWmTNZrLlDrnF39n9Xfj0GkNDYDUiOYhux-ey52axJUdiaAzBVwPWb2I2qkMlDsXQMpX-LK1WCEJod_nEN4WJfmS8w3xOJlcHNxH_U5Ek/s1600/loves+to+eat.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjY-SlZQHAq635CynuV9k6g5KC6ptLkyhTqDrqWmTNZrLlDrnF39n9Xfj0GkNDYDUiOYhux-ey52axJUdiaAzBVwPWb2I2qkMlDsXQMpX-LK1WCEJod_nEN4WJfmS8w3xOJlcHNxH_U5Ek/s400/loves+to+eat.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The kid loves to eat!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnjG9RcZ-882WpdbISU9kwihkN0ssFba9RCofJRZDgd-CrCaxZEk5PHxLNtXnJgMEKJ7sixgdpQkvGkbbgjiaWtooUu4pJ2qXc4-CJNddiF2XQrIgUywKIQJLxmlGI0J0NJiTn3tz8-a0/s1600/lovebug.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnjG9RcZ-882WpdbISU9kwihkN0ssFba9RCofJRZDgd-CrCaxZEk5PHxLNtXnJgMEKJ7sixgdpQkvGkbbgjiaWtooUu4pJ2qXc4-CJNddiF2XQrIgUywKIQJLxmlGI0J0NJiTn3tz8-a0/s400/lovebug.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hi!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPyj-0f9M82GNJd4zXelDYlI6lRQh5U0LxFu9mpPGk8VC60OCRy2ZWFFwIpvNBgka3107IAzCuc4Z2-8C-x1adsUE8s_PctSJFeRWjVaXLVcYzgF_BOA03HOl89AyaSFvXVgkx1SASAY0/s1600/superbaby.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPyj-0f9M82GNJd4zXelDYlI6lRQh5U0LxFu9mpPGk8VC60OCRy2ZWFFwIpvNBgka3107IAzCuc4Z2-8C-x1adsUE8s_PctSJFeRWjVaXLVcYzgF_BOA03HOl89AyaSFvXVgkx1SASAY0/s400/superbaby.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Superbaby!</td></tr>
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com7tag:blogger.com,1999:blog-2898157299165118892.post-33816703114604534542016-01-13T12:28:00.001-05:002016-01-13T12:32:41.722-05:00Jack: 9 Months<div class="separator" style="clear: both; text-align: center;">
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<br />
I fall more in love with this kid every single day. He is amazing. He's fun and happy and just loves life.<br />
<br />
This is him with haircut #3 (already)! I think he may start army crawling any day now. It's so fun to watch him grow and learn and experience new things.<br />
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And I am hangin' in there.<br />
<br />
Jack had his ear tube surgery last week and did well. It took him a bit to wake up from the anesthesia and there was a lot of crying but thankfully, everything went smoothly :-)<br />
<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com3tag:blogger.com,1999:blog-2898157299165118892.post-77282726698731239752016-01-01T09:58:00.002-05:002016-01-01T09:58:54.726-05:00It's a New Year2016. I've been blogging for 3 years. Things have changed a LOT in 3 years. <i>I</i> have changed a lot in 3 years. <br />
<br />
Life
is different now. Jack will be 9 months old soon. That blows my mind.
Welcoming him into our lives has been amazing. It has changed
everything. He is my life now, there's no way around that. Before Jack I
always kind of hated it when people said this but it's true: Until he
came along I honestly did not know I could love someone this much. Or in
this way. I truly live my life for him right now. Everything is for
him; to give him new experiences, to teach him things (teach him
EVERYthing), to make his life the best it can be. I find myself viewing
the world through his eyes now: the wonderment, the excitement. This is
the best thing I have ever done. We've had a tough few years but
everything we've been through has led up to this. And I am so grateful. I
am lucky to be his mom. I am so lucky to be able to witness every
single change and growth. He is simply amazing and I honestly love him
more and more every single day.<br />
<br />
[I should have put a "warning: mushy" caution on that last paragraph.]<br />
<br />
It's
not without it's difficulties though. Hubs and I have come out of (what
I hope is) the worst of the haze. The depression and anxiety... We're
both on meds that seems to be working well enough for us and we're both
still seeing therapists weekly. Soon we'll be joining one another at
each others therapy sessions too. We both have a lot of shit to deal
with and we also need to work on our marriage. I told my therapist that I
was upset because our relationship felt like it was changing and she
made a good point, saying: "Well, it's not just the two of you anymore.
You've added another person into your relationship - why <i>wouldn't </i>it
change?" She's right. It's really unrealistic of me to think that
things would be the same between us when everything else in our lives
has changed so much.<br />
<br />
Which brings me to the next big
topic which I honestly don't even know how broach so I'm just gonna say
it: We put our dog down the week before Christmas. I am heartbroken
about it. Honestly I feel numb. He went after Jack. As in, tried to
attack him :-( He has always had an aggressive temperament, even as a
tiny pup, and has bitten people before. He got much much worse after
Jack came. We were living with gates and crates and separation through
most of the house and had worked with multiple trainers and behavioral
specialists over the years. And every single one of them (including his
Vet) said it was in his DNA and wasn't trainable. We didn't want to
believe them. Then a few weeks ago he went after Jack. I thank God
that I was right there. I was on the floor between them and saw him
start to bare his teeth in the way I've seen before, right before he's
about to attack, and I pushed him out of the way to cover Jack with my
body. My dog attacked me instead. It was violent. It was scary. And it felt like it lasted a long time as I just allowed myself to be attacked as I laid over my son, protecting him. The
doctor said if I hadn't been wearing so many layers for him to rip
through (bra, t-shirt and sweatshirt) he could have very easily
punctured a lung. I have healed now but I will have scars. In a way I
am happy for the scars because despite what happened we loved that dog.
And in a weird twisted way, it's something to remember him by. I miss
him. I'm sad that it came to this. I'm sad he wasn't adoptable. I'm sad
the aggression wasn't trainable. I'm sad we had to say goodbye. But I
also look at Jack and am so unbelievably grateful that he is safe and
there's no option for an accident like that to happen again. It was like
keeping a loaded gun in the house - there was no way to tell when he
would go off. It was too dangerous. I miss him though. And choosing to
euthanize him brought back a whole flood of emotions and memories from
when we had to choose to end our first baby's life. Sigh. It was all too
similar. It's too much power. I hate the feeling.<br />
<br />
Honestly
it's hard for me to believe our pup is gone. It's been two weeks and I
still feel like he's just not here right now and we're going to go pick
him up later from the vet or groomer or wherever. It's surreal to see
your beloved dog go from strong and healthy one moment to then have to
remember that he's no longer living. He was our first dog. A corgi. We
did a lot of research and got him specifically because corgis are known
for being great family dogs, especially with small children.
Unfortunately, we got one who wasn't. We loved him though. He always had
issues and we made accommodations so his life was as good as it could
be despite his problems. But once Jack came it couldn't be all about him
anymore. And I could no longer eliminate all the situations that made
him anxious and nervous. How do you tell an 8 month old baby that you
can't touch the dog, that you can't look directly into his eyes because
it will make him so nervous he'll attack you? Sigh. I'm just sad. That
pup got me through a lot of hard times; through the years of
infertility, through saying goodbye to Petey, through Jack's dwarfism
diagnosis, through depression and loneliness... He was always here. For 4.5 years. I
worked from home for much of that time and he was my constant companion. I miss
him. Things are lonelier around here. Now it's just me and Jack and I
feel it.<br />
<br />
Besides that things are okay. I'm concerned
about winter because I have always had Seasonal Affective Disorder and
now I will be mostly stuck indoors with a baby for the next few months.
I'm still battling my PPD and PPA so I'm worried with SAD added in I may
have a rough winter. Now that the holidays are over I'm thinking of
looking into volunteering one or two days a week somewhere. Quite
honestly I feel sort of useless now that I'm a SAHM. I know I am raising
my child and that is so significant and important to me, and I am so
grateful we are able to swing it financially so I don't have to work
too, but in the monotony of everyday life I get bored. And lonely. And
depressed. I need to do something with myself and have a reason to put
on real pants everyday and maybe even some makeup, ha.<br />
<br />
It's a new year. It feels kind of like a new life for me now. And I don't know where this blog will go from here. It has been an important part of my past few years but I don't know if it has a place in my future or not. <br />
<br />
311 posts. 1938 comments. 133,800+ page views. <br />
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Thank you for being a part of it <3<br />
<br />
Happy New Year!ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com7tag:blogger.com,1999:blog-2898157299165118892.post-30039844240144739832015-12-20T17:00:00.000-05:002015-12-20T17:00:20.317-05:00Jack: 8 Months<br />
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I'm hoping to do a real update at some point soon. Hugs to anyone still following this blog ;-)<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com7tag:blogger.com,1999:blog-2898157299165118892.post-62493227306079255542015-11-13T09:53:00.001-05:002015-11-13T09:53:59.080-05:00Jack: 7 Months<div class="separator" style="clear: both; text-align: center;">
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<br />
Well, things have been interesting around here.<br />
<br />
I'm in therapy. Hubs is in therapy. We're both on anti-depressants. (Mine seem to be working a bit better than his.) We're also both in PT twice a week for our backs. My parents left last week and I've been cobbling together help from friends and family every day since. It has been hard for me to take care of Jack on my own because a couple weeks ago I pinched a nerve in my neck and twisted funny at the same time, knocking my top 8 vertebrae out of alignment. That was fun. Thanks to PT I'm definitely on the mend and can now hold Jack (and lift him in and out of his crib) so that's a huge improvement. Next week we're going down to just Nanny J in the mornings and all me in the afternoons through bedtime. Hopefully I'll be ok physically at that point. I'd be lying if I said I wasn't a little nervous. Luckily though, we have a lot of loving people in our lives that are willing and able to help if I say the word.<br />
<br />
Mentally/emotionally it's been a roller coaster. I mentioned in a previous post that Hubs has been struggling with paternal postnatal depression, anxiety and OCD. It got really bad (and quite scary) for a while there. Turns out he had a bad reaction to the first med he tried so once he switched he got a bit better. Then we got some tough medical news about Jack (more about that below) and he really spiraled downhill again. That one lasted for a while. I don't have the energy to write about the hard times except to say that when it's hard it is REALLY REALLY hard, but luckily he seems to be coming out of the worst of it again now. Thank God. But during the brief respite of relief I think I was able to finally take a breath and focus a bit more on myself and it was then that I realized just how bad <i>I</i> was. I realized I've been fighting PPD (post partum depression) and I reached out and got some help. Through therapy I'm now discovering I've been depressed for a long time, starting probably 2 years into infertility and extending through losing Petey, grieving, all the difficulties that go along with being pregnant after loss, receiving the shocking news at the end of my pregnancy about Jack's dwarfism, and now adjusting to life not just as a new mom with a baby but as one with a baby with special needs. My therapist made a point to say that I have been through multiple traumas over the past few years. I never thought of it that way but she's right. I'm working on being okay.<br />
<br />
As for Jack, he's doing awesome. He is such a sweet baby and really is the light of my life. The medical news I mentioned previously was two-fold: We happened to find out on the same day that 1) he'll need to have surgery soon to place ear tubes (it's scheduled for the day after Thanksgiving) and 2) his sleep study results came back and confirmed that not only does he have obstructive apnea (which we expected), but also central apnea which is the one we were hoping wouldn't be present. Unfortunately the episodes of central apnea were much more prevalent than the obstructive so it's unlikely he'll grow out of it (central = neurological). This past Monday we went to Boston Children's Hospital yet again (quickly becoming our new home away from home) and met with a pulmonologist and the head of the sleep clinic. Jack is now set up with oxygen at night which will hopefully help him breathe better and more consistently. Right now he is not in a C-PAP mask (likely because he is so little) but in three months we have our follow up appt to evaluate the effectiveness and have a repeat sleep study to see if he's receiving enough oxygen through just the nasal cannula. We haven't started the oxygen yet because we are still waiting for a part to come in but it is very weird to have respiratory equipment in his nursery now. I am not looking forward to having to try to wrangle him into this thing now every time he sleeps and honestly I'm going to be even MORE concerned about him at night now because I'll be worried he'll get the tubing wrapped around his neck :-(<br />
<br />
As for the ear tubes: It's a routine surgery for lots of little kids so normally I wouldn't be concerned about it but he does need to go under anesthesia and kiddos with dwarfism often have complications with anesthesia. This will be his first experience with it so I'm not sure how it will go but I'm hoping for the best. (I'm trying not to think about it much honestly.)<br />
<br />
I feel like I've been taking the news in stride but Hubs hasn't been able to do that. He is in much worse shape than me and with every additional thing he just feels overwhelmed and extremely negative. He's having pervasive catastrophic thoughts so when I told him that Jack's study came back as positive for obstructive and central apnea he can't see it as: "Ok, we'll meet with specialists and figure out what will help him breathe better at night", he sees it as: "Oh my god, there's <i>another </i>medical issue with our child and he could die in his sleep and since it's central apnea he will have neurological issues and likely has spinal compression too (since central apnea can be a marker for compression) so he'll have to have back surgery and he'll probably have complications with the anesthesia and and and..." I am sure it is exhausting. The anxiety reduces him to a paralyzed crying heap of a man who is stuck in his own head and unable to see his way out or gain perspective. It's hard. And it's hard on me too. I am learning mental illness is a scary and unpredictable beast. It's an ailment - like a broken arm for instance - for which you need treatment (therapy and meds) but unlike a broken arm, you can't SEE your progress. You can't see it heal in tangible ways. You don't know what will re-injure you. You don't know how much longer it will take to be able to be back to full strength again. It's tough. And I am already dreading the next "bad" news we get because I fully expect for him to spiral downward again. I just have to hope that he's learning tools in therapy, as I am, to be able to better handle the things that are thrown our way.<br />
<br />
Our relationship, our marriage, is very different right now because he is very different right now. He's not himself. And I am different too. It's impossible not to be now that Jack is here. And I think it's also impossible not to be after the things we have been through. It reminds me of this quote:<br />
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I think we'll be okay though. We're working through it; in our own ways and together. It will be a long process though. In the meantime I'm taking one day at a time and enjoying my little guy as much as I possibly can. He is just amazing.<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com7tag:blogger.com,1999:blog-2898157299165118892.post-50472274039082610152015-10-18T10:36:00.002-04:002015-10-18T10:41:22.809-04:00Dwarfism Awareness MonthOctober is Dwarfism Awareness Month! Just as I have done previously with Infertility Awareness Week, I am using my Facebook feed to try to raise awareness about dwarfism by posting interesting info and links. I've gotten some good feedback so far, lots of interest and quite a few people thanking me saying they're learning a lot. That's exactly what I'm going for :-)<br />
<br />
Below are the posts I have made thus far. I'll add to this periodically as I post more. If you'd like to also help raise awareness about dwarfism feel free to copy and paste any of the below info you like! Very few people know anything about dwarfism so the more awareness that can be raised, the better!<br />
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October is awareness month for two causes that are near and dear to my
heart: Pregnancy and Infant Loss Awareness, and Dwarfism Awareness. I'll
be posting about both this month because neither are as well understood
as they should be and my hope is that I may be able to provide you, my
friends, with some information about them. [Hubs] and I never thought
we'd have to say goodbye to our first child and we never thought our
second would be born with Achondroplasia, the most common form of
dwarfism. We miss our angel every day and we are thankful every day for
the amazing son we hold in our arms. I hope you'll take a minute to read
my posts this month!<br />
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Learn some facts about dwarfism! </div>
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Did you know that the majority of children born
with dwarfism (80%) have average-sized parents? Dwarfism is caused by a
spontaneous gene mutation at conception. What prompts a gene to change
is not yet clearly understood. It is seemingly random and unpreventable,
and can occur in any pregnancy. That means you too could one day have a
child with dwarfism!<br />
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Did you know that there is over 200 different types of
dwarfism? Jack's form is called Achondroplasia, which is the most common
form. It is characterized by a large head, average sized trunk and
shorter arms and legs (think: Peter Dinklage aka badass Tyrion Lannister
from G.O.T.). <br />
We
are grateful to have a diagnosis as it helps us and Jack's doctors know
what to expect and what to watch out for. Many babies with dwarfism
won't have a diagnosis confirmed for many months, even years, and some
never officially receive a diagnosis at all. <br />
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Most types of dwarfism have medical complications,
some more severe than
others. Some common ones associated with Achondroplasia (the type Jack
has) are sleep apnea,
hydrocephalus ("water on the brain"), spinal compression, chronic ear
infections, and orthopedic issues. We are always on the lookout for
signs of each of these problems and see specialists regularly. Now that
Jack is 6 months old we are beginning to notice some of the expected
delays in motor skill development due to his Achon. Most kiddos
with Achon will experience motor delays with things like controlling
the movements of the head, sitting up, crawling, and walking, but
intellectual development is
normal.<br />
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Did you know that the word “midget” is considered highly offensive to
those with dwarfism? This dates back to "freak show" times when little
people were only seen as here for others' entertainment and not as
people in their own right. Acceptable words to use are: dwarf, little
person, person with dwarfism, or short-statured. But most people with
dwarfism just prefer to be called by their name rather than by their
condition. <br />
Please click on the below link to learn 5 things you
should never say to a little person and to get a glimpse of what daily
life is like for many short-statured individuals.<br />
<a href="http://www.foxnews.com/health/2014/08/26/5-things-should-never-say-to-little-person/" target="_blank">http://www.foxnews.com/health/<wbr></wbr>2014/08/26/5-things-should-<wbr></wbr>never-say-to-little-person/</a><br />
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As the parent of a little person this is hard for me to read but it just reaffirms why we need dwarfism awareness.<br />
<a href="https://lovebecxo.wordpress.com/" target="_blank">https://lovebecxo.wordpress.<wbr></wbr>com/2015/10/02/6/</a><br />
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There
is no single treatment for dwarfism and most people with this
condition and their families do not feel it is something to be "fixed".
Instead, individualized accommodations such as
specialized furniture, stools, long grabbers/sticks, etc., are used by
people with dwarfism throughout their lives. Individuals with short
stature can
do just about everything an average-height person can, sometimes just in
a different way. Their height does not keep them from leading fulfilled
lives, achieving higher
levels of education, or accomplishing career and personal ambitions.
Dwarfism is not a disease and though opinions vary within the little
people community
about whether dwarfism is a disability, it is a recognized
condition under the Americans with Disabilities Act.<br />
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When [Hubs] and I found out at 36 weeks pregnant that our child had
dwarfism we had no idea what to do or what to think. We knew almost
nothing about dwarfism and didn't even know that we, as two average
height people with no other little people (LPs) in our families, could
even conceive a child with dwarfism! We were lucky to quickly find some
LP groups on facebook and were welcomed by some wonderful people into
this new family with open arms. We were offered all kinds of guidance,
resources, and support for which we will be forever grateful. It was
hard to wrap our brains around what was happening and that our child
(and in fact our future) would be very different from what we had always
pictured. One of the things that helped us come to terms with that is
the following essay we were given called "Welcome to Holland":<br />
<a href="http://www.our-kids.org/archives/Holland.html">http://www.our-kids.org/archives/Holland.html</a><br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com1tag:blogger.com,1999:blog-2898157299165118892.post-30702042364109995592015-10-15T14:06:00.000-04:002015-10-15T14:06:06.392-04:006 Month Medical UpdateI haven't posted much about Jack's medical issues so I figured I'd give an update. There has been a lot of activity: <br />
<ul>
<li>Regular monthly pediatrician visits and shots</li>
<li>Twice weekly physical therapy through Early Intervention</li>
<li>Audiologist has administered 4 hearing tests since birth and confirmed he has "moderate" hearing loss in each ear (on a scale of <i>slight-mild-moderate-severe</i>)</li>
<li>Nephrologist (Kidney Specialist) has seen evidence of an issue with his one kidney: a "reflux" effect where some of the urine output flows back into the kidney therefore increasing chances of reoccurring kidney infections</li>
<li>Otolaryngologist (Ear/Nose/Throat Specialist) determined he may need surgery to
remove tonsils and adenoids (and have ear tubes placed at the same time as he is prone to reoccurring ear infections)</li>
<li>He had an overnight sleep study done at Boston Children's Hospital last week and we are waiting for the results to see if he has sleep apnea. If he does we are rooting for "obstructive" apnea as that would likely get better with the adenoidectomy, vs. "central" apnea which would be a bigger issue as that would mean his brain is not telling his body to consistently breathe while asleep</li>
<li>Geneticist has referred us to a Neurosurgeon for an MRI to see if a certain area of his neck is causing spinal
compression as we are beginning to see some evidence of possible nerve
damage. If so, he will need to have decompression surgery on his spine at the
base of his neck</li>
<li>Appt scheduled with Orthopedic surgeon to examine kyphosis of his spine, bowing of the legs, and to ensure proper hip alignment</li>
</ul>
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I think that's all of it. We have seen a LOT of doctors in 6 months. His pediatrician, geneticist, nephrologist, and physical therapists are through the hospital here in NH but I've asked for referrals for specific doctors (otolaryngologist, audiologist, neurosurgeon, orthopedic surgeon) at Boston Children's Hospital based on recommendations from other parents of little people. It has been quite a juggling act to get the different hospitals and doctors to interact, share info, xrays, films, etc. In certain instances we've also reached out to the skeletal dysplasia experts who work out of Wilmington, DE for second (or third) opinions. Most doctors do not have experience treating little people (and many doctors have differing opinions just to make it MORE confusing) so we've had to make certain judgment calls as parents new to the world of dwarfism on whether or not we think a certain doctor knows what s/he's doing (and unfortunately, in certain cases, they don't seem to). I've had to be "That Person" who demands more in depth information and further testing and referrals to other doctors. But it's just the name of the game I guess. In addition, we've had issues with insurance because once I quit my job Jack and I went onto my husband's insurance which has been a gigantic pain in the ass. In the last 6 months I have had to learn a LOT of new things not just about dwarfism, but about how hospitals operate, interacting with medical staff, tricks to get what you want, how to advocate for yourself, navigating insurance red-tape...you name it. This is my full time job. Now I'm amused that I contemplated going to back to work after maternity leave.<br />
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Jack has been a champ through it all. He really is awesome. Here he is during last week's sleep study: <br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi67vl0l49ykUxTyuE6uVhisb-FgK4DIB4dj4B7F3ekQKjFj-5PXcfBfBoOl5Cxfhh-xmQK0bLAiL1IqUvZ0RrVk5t8cHLOZVShQ-QuqNmSU9sk4NkC2oHM5kO55JqUzYiKx3LzOn8Fcww/s1600/IMG_6045.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi67vl0l49ykUxTyuE6uVhisb-FgK4DIB4dj4B7F3ekQKjFj-5PXcfBfBoOl5Cxfhh-xmQK0bLAiL1IqUvZ0RrVk5t8cHLOZVShQ-QuqNmSU9sk4NkC2oHM5kO55JqUzYiKx3LzOn8Fcww/s320/IMG_6045.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We STILL cannot get all the adhesive and gunk out of his hair from all
the electrodes they put on him so I think we're going to have to chop
some of his sweet little locks :-(</td></tr>
</tbody></table>
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The potential surgeries (and even just the MRI) are scary for us because complications with anesthesia are common for little people. I'm trying not to think about that right now. These days I don't think much beyond the next appointment. If I think too much I might have a hard time moving forward. So instead, we are just plugging along. This is now my reality and my new title is "super-mom" and "advocate". I'm also now "educator" since very few people know anything about dwarfism so I'm working on that. It's interesting because I'm just learning as I go and trying to spread the knowledge. I honestly don't know what I would do without my LP (little people) groups on facebook. They have been my lifeline and my guidance in navigating this whole new world.<br />
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<br />ChickinNHhttp://www.blogger.com/profile/04126625683837771573noreply@blogger.com9